It's my first day of writing here, after weeks of thinking about it, because it's time to just begin.

This blog is meant to be a blog. A daily capture of my lived experience as I recover from ME/CFS.

So, no lengthy content planning or outlining, no real editing process. I need a space where I can just write and trust that if it's helpful to anyone, they will find it and read it.

I would like to log my recovery journey because these massive life epochs are never as clear as you think they will be in your memory. The day to day details are lost over time. Those details might be helpful to others so they need to be captured now. And the larger lessons learned I want to have documented for myself as well.

I'm propped up in bed, post warm bath, with a lovely pukka tea, on the second day of a wobble, and writing is easier than I thought it would be.

A wobble?? I'm on day two of a "crash" or "post-exertional malaise (PEM)" but I learned from the lovely Anj Granieri, me/cfs warrior and teacher of the Edison Effect program, to call this a wobble.

But actually, what happened is I FORGOT about that until I started typing here. And so these are the reasons I am here -

to write it all out

to understand this very complex experience

to remember what I'm learning along the way

to remember it further on down the road

to share with anyone it may help and maybe even make some connections along the way

Most helpful practices for today

Slowing way down and trusting that will be ok

Coming back to that trusting as many times as I need to

Taking it one moment at a time in my body and breath

Time outside on a mild May day

Self-compassion for my own need for quiet and rest

Keeping headphones in to limit sensory input

Very gentle yoga outside then a rest in the hammock

Communicating ahead of time with family members

Staying away from internet browsing and research

Listening to a gentle podcast instead (Anna Marsh at The Chronic Fatigue & Burnout Recovery Podcast)

The First Day