It's my first day of writing here, after weeks of thinking about it, because it's time to just begin.
This blog is meant to be a blog. A daily capture of my lived experience as I recover from ME/CFS.
So, no lengthy content planning or outlining, no real editing process. I need a space where I can just write and trust that if it's helpful to anyone, they will find it and read it.
I would like to log my recovery journey because these massive life epochs are never as clear as you think they will be in your memory. The day to day details are lost over time. Those details might be helpful to others so they need to be captured now. And the larger lessons learned I want to have documented for myself as well.
I'm propped up in bed, post warm bath, with a lovely pukka tea, on the second day of a wobble, and writing is easier than I thought it would be.
A wobble?? I'm on day two of a "crash" or "post-exertional malaise (PEM)" but I learned from the lovely Anj Granieri, me/cfs warrior and teacher of the Edison Effect program, to call this a wobble.
But actually, what happened is I FORGOT about that until I started typing here. And so these are the reasons I am here -
to write it all out
to understand this very complex experience
to remember what I'm learning along the way
to remember it further on down the road
to share with anyone it may help and maybe even make some connections along the way
Most helpful practices for today
Slowing way down and trusting that will be ok
Coming back to that trusting as many times as I need to
Taking it one moment at a time in my body and breath
Time outside on a mild May day
Self-compassion for my own need for quiet and rest
Keeping headphones in to limit sensory input
Very gentle yoga outside then a rest in the hammock
Communicating ahead of time with family members
Staying away from internet browsing and research
Listening to a gentle podcast instead (Anna Marsh at The Chronic Fatigue & Burnout Recovery Podcast)